International Spina Bifida and Hydrocephalus Day 2014
KCH will again commemorate International Spina Bifida and Hydrocephalus day on the 25th October, 2014.
The theme: “Increasing access to health care”
The day will include:
- The launch of the SBH parents’ support group
- Speeches from the Minister of Health – Buganda Government, Minister of Health – Central Government and Member of Parliament for Disability
The day will also include an educational training on hydrocephalus and spina bifida.
It will end with presentations from the SBH Parents’ support group leader and the SBH Youths’ advisory committee Leader.
8-month-old Safina lives in the Western Uganda in Hoima district. Both her parents are subsistence farmers. She is the first born of her mother and the fourth born of her father.
Safina was born with hydrocephalus. Her mother never imagined that she would give birth to a child with hydrocephalus, a condition she had always assumed was only for the parents with bad luck.
On delivery, Safina’s mother lost all the hope for the bright future she had in store for Safina. Also, being the second wife, the comments she received from the community as well as her husband’s first family were discouraging.
Single handily, Safina’s mother sought for all means to take her child for an operation, which was very successful. Later at KCH, Safina underwent therapies and her mother underwent education training on hydrocephalus and spina bifida conditions. she also got mutual support from other parents with children with hydrocephalus and spina bifida, which helped to restore her hope for her child.
Safina went on to receive other rehabilitation services at KCH, both at the centre and at home during home visits.
Safina is now progressing very well. She crawls and can pull herself to a standing position while holding unto objects. Her mother is full of hope for her and now much aware of hydrocephalus and spina bifida conditions.
She is very grateful for the medical support received by her child through KCH with support of IFSBH project.